Where Are My Pillows
Kanal-Details
Where Are My Pillows
Kicking the sh*t out of brain inflammation (autoimmune encephalitis).
Neueste Episoden
23 Episoden
S1E22 Conclusion: There’s hope out there. | Anddd that’s a wrap on World Encephalitis Day 2021!
It’s been a slice. Thank you to everyone who’s tuned in! For those of you in the midst of a challenging journey right now: know that you’re not alone....
S1E21 My approach to self-advocacy
For some encephalitis patients, finding good medical care is half the battle (or more) towards getting on the road to healing. Many doctors simply lac...
S1E20 2021 World Encephalitis Day Conference Highlights | Get ready for LIGHTS, CAMERA, ACTION on Feb 22!
From cutting-edge research shared by encephalitis experts, to inspiring stories from patients and caregivers, #WEDConf2021 was a day to remember! Shou...
S1E19 Be kind to yourself in recovery
Most likely, recovery will NOT be linear, pretty, or fast. From one encephalitis survivor to another: don't disregard your mental health, and allow yo...
S1E18 Neuropsychological (and sometimes IQ) testing—it’s important!
If neurological or psychological issues are impairing your cognition, it’s tremendously helpful to get professional testing done to characterize your...
S1E17 Meeting another encephalitis survivor, in PERSON?! | Get the deets on the World Encephalitis Day Conference!
World Encephalitis Day: what’s it about? In today’s episode we reminisce about last year’s conference and discuss what’s going down this year for 2021...
S1E16 What IS encephalitis, anyway? | How it's impacted my life
Schooling, career trajectory, social life, family ties—encephalitis can radically throw all of these things upside down. Despite the disruptive impact...
S1E15 My doctor stood me up | on medical trauma and anxiety
What does medical trauma and medical system-induced anxiety feel like? Let me tell you a story…
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This segment is part of the World E...
S2E14 In appreciation of two neurologists, countless nurses, and… hospital blankets.
Striking gold… with neurologists?!! Yup! In today's holiday podcast edition, we explore some of the wonderful healthcare providers I've encountered du...
S1E13 My FIVE year diagnostic journey
The unfortunate reality is that the majority of doctors have inadequate skill and expertise in diagnosing autoimmune encephalitis. Making things worse...
S1E12 Differentiating being lazy vs. being sick
Anyone with an invisible, chronic illness will relate with the struggle of not being able to do the same things they were once capable of. For me, I w...
S1E11 It's infusion day!
Autoimmune encephalitis therapy: what does that look like? Listen in on what it's like to receive an IVIG infusion, a common ongoing medication used t...
S1E10 A year in the life of an autoimmune encephalitis survivor
In this birthday podcast, we talk about my career, autoimmune encephalitis relapse, and gratitude for the best gift of all: healing.
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S1E9 Encephalitis recovery details *juicy*
Fresh out of a hospital stay, I discuss the treatments I was given for my autoimmune encephalitis relapse and how the course of recovery is going.
S1E8 Caregivers, you the real MVPs
Caregivers play such a critical role for us patients. They also go through more than they should have to endure, sometimes without proper appreciation...
S1E7 Primary depression? Anxiety? Or an autoimmune illness?
Listen to your gut. If your doctor is using the label of "depression" or "anxiety" as a catch-all diagnosis to explain away various other symptoms, ke...
S1E6 Embarrassing brain fog, and seeking comfort
Sometimes your mind gets stuck, but it revs back up again moments later. Other times, your entire existence becomes a trudge through a haze of utter c...
S1E5 My glowing review of neurologists (NOT)
As an encephalitis patient, neurologists can be your best friend or your worst enemy—it’s a mixed bag. Most, unfortunately, do not understand this ill...
S1E4 Quality of life illnesses: an overlooked issue in medical care
Hear me strugglebus to explain how my quality of life has been impacted by autoimmune encephalitis. Note – this episode (as well as several others) wa...
S1E3 Brain dysfunction, verbal fluency issues, and social situations
Your brain is not left the same post-encephalitis, unfortunately. Today we talk about some cognitive struggles, and how they impact the way you intera...
S1E2 You don't need to go through this alone | on integrating into the encephalitis community
Don't let this rare illness isolate you from others. Becoming part of some autoimmune encephalitis support groups has not only done wonders for my men...
S1E1 Major updates + countdown to World Encephalitis Day February 22, 2021
Get ready for daily, bite-size podcast episodes delivered straight to you by an autoimmune encephalitis survivor. World Encephalitis Day is February 2...
S0E0 One year after hospitalization from autoimmune encephalitis
Wondering what life might look like 1 year after autoimmune encephalitis? Have a listen to the thoughts that come to my mind on the anniversary of my...